Dylan is a 5-year-old boy with a ton of personality who has been filling his family’s hearts with love and putting a smile on the face of everyone that meets him. Born at 9lbs 12 oz and 21 ¼ inches long, Dylan was a giant and kept growing until he was about 18 months old. He was a little behind in certain milestones, such as walking, however his parents did not see any reason for concern. The biggest enigma with Dylan was that he would wake up during the night and whimpering about leg pain during the day.
When he was 2 ½ he articulated that he had pain in his feet and knees. He was sent for an x-ray by a local orthopedic doctor, who told his mother there was an “abnormality” in his bones and was referred to AI Dupont in Delaware. After seeing the specialists at Dupont in 2010, Dylan was diagnosed with pseudoachondroplasia.
His parents now struggle to keep the pain in Dylan’s knees and ankles at bay, and they always have a heating pad and Motrin on hand at all times. They try to limit the amount of running and jumping that he does, but anyone with a 5 year-old boy knows how that goes.
His mom often say that Dylan is the toughest person that she has ever met. He knows that God made his bones a little different and that those differences will make it a little harder for him to do some things. His response to this fact is “I know, but God made me tougher than everyone else.”
With no history of dwarfism in Dylan’s family, his parents would never have imagined that it was a possibility. They would do anything to take the pain away from Dylan and hope that by telling his story to help raise research money may lead to more of a pain-free life.