Riley

Riley Riley’s family felt so blessed when she entered their world in January 2010. She was very happy and healthy baby that showed no signs of medical problems. Riley seemed to hit regular milestones. However, her parents noticed she was not growing at 18 months. After a few appointments and DNA testing it was confirmed Riley had pseudoachondroplasia. This type of skeletal dysplasia affects the growth of her arms, legs, and joints. Riley seems to be in pain at times and will likely encounter surgeries as her joints wear down over time.

Riley is a great bundle of joy that is extremely energetic. She loves to dance, sing and swim. She has an incredible vocabulary for a three-year-old. She was a flower girl twice in 2012 and did an amazing job. Riley loves to play and explore new things.

Her parents hope to find ways to help fund research for future generations.

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